Posted in Archive, June 2016

When The Drs Terminology Gets Terrifying

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This week I have had three GP appointments, and visited three different hospitals. It’s been busy to say the least. For the majority of it I have managed to stay relatively calm and think in clear cut clinical terms. Today that went out the window. My GP this morning, unhappy at the treatment I was receiving at another hospital sent me with an urgent referral to my nearest emergency eye unit.  It has been an extremely long day of explaining symptoms, examinations and watching the same concerned expression on the nurses and Drs faces, when they realize that yes I really cannot see out of my eye.

Optic Neuritis for the second time in just under six months had the Drs in charge of my care today fairly concerned. Today they presented the fact to me that they had to consider that Multiple Sclerosis was the reason behind my Optic Neuritis. So tomorrow I’m heading back to the hospital for blood tests as there are a few other conditions than cause vision problems that they want to rule out, and at some point in the next two weeks I’ll be having a contrast MRI of my head and spine to give them more of an idea of what is going on.  Now I’m doing my best to remain optimistic, my way of thinking so far is that I already have a fair few neurological issues, so surely it’s another part of the bodies turn to be the problem. Not the most logical attitude I know, but it’s working for me.

In the meantime, Disney soundtracks are my distraction.

Author:

I'm 27 years old, a mother, author, partner and spoonie. I suffer from Dystonia,POTS, EDS, Osteoarthritis and Lyme Disease. I have set up my blog to help spread awareness and bring light to this condition. This blog will be full of all my experiences that happen during my dystonia and chronic illness journey, from natterings, musings, moans, laughs, highs and lows. :-) It will be a little bit of everything

7 thoughts on “When The Drs Terminology Gets Terrifying

  1. leejcaroll – I am the author of A PAINED LIFE, a chronic pain journey. As an advocate for women in pain awareness our support site is Women In Pain Awareness group https://www.facebook.com/#!/groups/111961795481256/ , for women and men in pain and those that support them. My blog, THE PAINED LIFE, 30 years, and counting, of living with chronic pain. can be found at: http://apainedlife.blogspot.com/ I am also a certified hypnotherapist and educator in stress reduction, stage fright, and anti anxiety techniques.
    leejcaroll says:

    Your courage through all of this always astounds me.

    1. dystoniaandme – Tring, Hertfordshire, – I'm 27 years old, a mother, author, partner and spoonie. I suffer from Dystonia,POTS, EDS, Osteoarthritis and Lyme Disease. I have set up my blog to help spread awareness and bring light to this condition. This blog will be full of all my experiences that happen during my dystonia and chronic illness journey, from natterings, musings, moans, laughs, highs and lows. :-) It will be a little bit of everything
      dystoniaandme says:

      Thank You <3

    1. dystoniaandme – Tring, Hertfordshire, – I'm 27 years old, a mother, author, partner and spoonie. I suffer from Dystonia,POTS, EDS, Osteoarthritis and Lyme Disease. I have set up my blog to help spread awareness and bring light to this condition. This blog will be full of all my experiences that happen during my dystonia and chronic illness journey, from natterings, musings, moans, laughs, highs and lows. :-) It will be a little bit of everything
      dystoniaandme says:

      Thank-you

  2. hand in ther kidddo……….Life is BUT A WILD RIDE OR A JU]ORNEY AND WHICH ROAD YOU ARE ON, IS TOATALLY UP TO YOU………..AS FOR MY SELF, IT’S THE SAME..NOT OVERJOYED…………..BUT LEARN TO LOVE THE LORD YOUR GOD FOR IT IS TRULY RIGHT AND JUST…… AND THANK YOU FOR THE NOTE Don

  3. Every time I feel bad about my pain, I see what someone else is going through and I am glad my symptoms are not worse. ( Chronic back pain and other stuff.) I am praying for you.

    1. dystoniaandme – Tring, Hertfordshire, – I'm 27 years old, a mother, author, partner and spoonie. I suffer from Dystonia,POTS, EDS, Osteoarthritis and Lyme Disease. I have set up my blog to help spread awareness and bring light to this condition. This blog will be full of all my experiences that happen during my dystonia and chronic illness journey, from natterings, musings, moans, laughs, highs and lows. :-) It will be a little bit of everything
      dystoniaandme says:

      Thank-you

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