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After a haywire week I am home from hospital and resting at my mum’s for a little while. My plan at the moment is to catch up on the university work that I have missed and take some time out for myself to reboot; would you believe i’m finally pacing! It only took four years.
During this time I won’t be blogging as catching up and getting back on track with my studies is currently my number one aim. So look out for a new blog post late December/early January.
Well done, Beccy. That is exactly the right thing to do. Enjoy you ‘YOU’ time. Pacing yourself is key to your well-being. Sending positive vibes as ever.
Hi! I’ve been reading your blog for quite some time! I also have dystonia in my face, mouth and the past 2 years, down through my shoulders. Ugh! I don’t have pain or have dislocations, but I do take meds and get botox. I am now following a new treatment using an appliance to stabilize my jaw joint (modified Gelb appliance). Have you seen the theories that a dislocated jaw and misplaced discs can irritate nerves leading to spasms and dystonia? There are various youtube videos and web pages. google “cervical dystonia tmj”
Many cases are corrected by first stabilizing the jaw joint: the theory is that it is the jaw joint that causes muscle overcompensation and spasms. You can email me anytime you like. I’ve also had lyme disease and been treated for it (no effect on dystonia). Hugs and take care.
Hi Catherine, thanks for your comment and for reading. I’ve read a few of theories and have discussed them with my neuro who doesn’t seem to think there is much merit in them, e.g the fact that these treatments offer a cure would suggest that its not dystonia but something else at play. But if your finding it helpful best of luck to you.