Posted in Archive, January

The Battle Against My Neurological Demons!

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Today has involved yet another fierce battle against my Dystonia and my Non Epileptic Seizures. A battle which is still yet to be won. I try to defend myself against my neurological demons by sitting up as slowly as possible  attempting to use distraction techniques as I attempt each task, but so far my neurological demons are one step ahead of me, constantly ready to launch their next attack on my body.

I am spending most the day in bed at the moment, to recover from Tuesdays incident. Just to get up to go to the toilet is almost impossible. 9 out 10 times just by sitting up a seizure will happen, this then means I have to try to sit up again, which is rather painful due to the sprains and soft tissue damage caused by Tuesdays fall and seizures. Once I have won the battle to get up, my mother and one of my siblings have to help me walk to the toilet and back. This can take a long time in itself as if I collapse and seize on the way there, I find it extremely hard and painful to get back up.

We  are still unsure of how many seizures I am having, as some of them I am completely unaware of. My body hurts a lot but my head is the worst. I feel dizzy often and have a constant feeling of there being too much pressure in my head. I feel like someone needs to put a needle into my head and drain out whatever is causing it. It is a rather painful feeling.

This battle for control is very physically and emotionally draining. I desperately want back the control of my body, but my Neurological demons seem to have other plans for me at the moment. I am hoping that my consultant (when he bothers to get back to us) will be able to provide us with some advice.

 

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Author:

I'm 27 years old, a mother, author, partner and spoonie. I suffer from Dystonia,POTS, EDS, Osteoarthritis and Lyme Disease. I have set up my blog to help spread awareness and bring light to this condition. This blog will be full of all my experiences that happen during my dystonia and chronic illness journey, from natterings, musings, moans, laughs, highs and lows. :-) It will be a little bit of everything

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