Posted in Archive, June 2013

Summer Achievements


I spend 99% of my time shut up in my room due to Dystonia. Throughout the months leading up to this summer I was concerned as to how my body was going to react as bright light triggers my eye spasms (I am unable to currently wear my sunglasses or glasses as it causes a facial spasm) and I have to be careful in the sunlight as my antibiotics for suspected Lyme Disease causes light sensitivity. I had been thinking for a while now that I was just going to have accept that I would be having to spend the whole of the summer indoors.

It turns out I need not have been so pessimistic. This week I have been out in the garden several times with my family, family friends and had two BBQ’s. I was overjoyed to be out socializing with our family friends. We made sure I was in the shade so that both my body and eyes were protected. It was perfect and I had such a great time.

This achievement has left me thrilled as it has reassured me that I can enjoy this summer and the summers to come without worry. I only have to be a bit careful and that’s not much of an issue. Being out in the warmth and socializing has really lifted my spirits and left me feeling overjoyed and calm.

I look forward to seeing what the rest of the summer has in store.




I'm 27 years old, a mother, author, partner and spoonie. I suffer from Dystonia,POTS, EDS, Osteoarthritis and Lyme Disease. I have set up my blog to help spread awareness and bring light to this condition. This blog will be full of all my experiences that happen during my dystonia and chronic illness journey, from natterings, musings, moans, laughs, highs and lows. :-) It will be a little bit of everything

3 thoughts on “Summer Achievements

  1. juliet chantel – I'm a punk rock prom queen, neuropsych patient with Dystonia, severe Tourette's Syndrome and all the cormorbids that go with them... and I think I'm a generally awesome person ... and I really like to write. So, you'll get to learn about why this disabled person likes to TRY to work, and why it's not a good idea... and how perspective changes everything. these are the DAILY Confessions of a Girl: Objects in monitor are closer than they appear. ~*~ Follow me on Twitter @Little_Squal <a href=""></a>
    juliet chantel says:

    woohoo! So glad you got out in the open for a bit! 🙂

  2. I followed your link and read up on Lymph disease, it makes me glad I live south of the equator. We have ticks, but not lymph disease, thank goodness. It is good that you can enjoy summer, in the shade you have little to no risk of skin cancer either.

  3. Love the success you achieved. Each moment spent with others, instead of in isolation, is a huge step forward. I wish you many more happy hours spent in the company of others. Social interaction keeps me alive.

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