Posted in September

Saturdays fun run


For the past month or so, I have been raising money for the dystonia society by getting family and friends to sponsor me. My mum, step-dad and I took part in the Crystal Palace 5k big fun run.

Despite having a seizure, going blind a few times and my dystonia generally playing up, I managed to complete the 5k 🙂 It was such a lovely hot afternoon and was great fun. I got to meet some of the dystonia society staff who were very friendly and really made my day.

I managed to raise well over £500 which is incredible!!!!  I am a very happy girl.


I'm 27 years old, a mother, author, partner and spoonie. I suffer from Dystonia,POTS, EDS, Osteoarthritis and Lyme Disease. I have set up my blog to help spread awareness and bring light to this condition. This blog will be full of all my experiences that happen during my dystonia and chronic illness journey, from natterings, musings, moans, laughs, highs and lows. :-) It will be a little bit of everything

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