Posted in Archive, March 2015

Positive Neurology Appointment


Today I had my six weekly appointment with my Neurologist in London. As usual he was charming himself. He never fails to listen, which is a breath of fresh air after the experience I often receive at the hands of various other medical professionals. As many of you will know, recently my twitches have been worsening. This has been impacting on my day-to-day life. Some days I struggle just to dress myself and I worry about whether I will hit someone in the street or knock products over in a shop. These factors don’t stop me from going about my life, but they do prove to be rather big hurdles though, as I really would rather not apologise for twitching and hitting someone.

I explained this to my neurologist. Honestly I was expecting, at best, for him to up one of my many medications or add yet another one in to the cocktail. He surprised me however by offering to inject my shoulder to see if this helped bring me some relief. This was a treatment I had debated asking for, but I had wanted to listen to his suggestions first. After all, he’s kept my twitches fairly well controlled for the past two years. He injected my shoulder muscles three times, which in the moment didn’t bother me too much, but I am really feeling it now! I am keeping my fingers crossed that hopefully this will do the trick.

As usual he advised me not to over do it. I can’t help but laugh. I try to take this on board, I really do. Dystonia already holds me back so much though, I don’t plan on taking the easy option. Even if that would mean less pain. I would rather grasp every opportunity that life throw at me and live every second to the full.


I'm 27 years old, a mother, author, partner and spoonie. I suffer from Dystonia,POTS, EDS, Osteoarthritis and Lyme Disease. I have set up my blog to help spread awareness and bring light to this condition. This blog will be full of all my experiences that happen during my dystonia and chronic illness journey, from natterings, musings, moans, laughs, highs and lows. :-) It will be a little bit of everything

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