Posted in September

No Spasms The Same

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Today’s post was going to be a general overview of the different subtypes of Dystonia. However as I’m more spasmy than usual this one will just be a quick look at how each day presents differently.

One of the complications of Dystonia is that even within the same type of Dystonia symptoms can dramatically differ from patient to patient, hour to hour. This results in making treatment of the condition especially complicated as there is no one hard and fast rule of treatment that works for everyone. What one person responds to may worsen another patient. 

My body at the moment is a perfect example of this. When I was admitted to hospital on Sunday it was mainly my jaw spasming; which whilst not ideal is manageable. However for the last 24 hours my eyes, neck and back have all joined in, resulting in an increase in painful spasms leaving me struggling to independently remain upright and experiencing frequent dislocations.

Today’s most frequent spasms

 This is when awareness of the condition becomes key. In hospitals it’s not unusual to see a different doctor each day, but this isn’t always a good thing.  Yesterday’s doctor was extremely understanding of my situation and left me feeling upbeat, todays doctor left me gobsmacked after informing me that he just couldn’t understand why experiencing extreme spasms and dislocations is painful. It’s frustrating having to battle daily for appropiate pain relief and treatment but sadly this is the reality for many sufferers of the condition.

Author:

I'm 27 years old, a mother, author, partner and spoonie. I suffer from Dystonia,POTS, EDS, Osteoarthritis and Lyme Disease. I have set up my blog to help spread awareness and bring light to this condition. This blog will be full of all my experiences that happen during my dystonia and chronic illness journey, from natterings, musings, moans, laughs, highs and lows. :-) It will be a little bit of everything

2 thoughts on “No Spasms The Same

  1. Sending love and light… your strength amazes me each time I read your posts. One consistent provider is so important.

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