Posted in Archive, October

Musings on my dystonia


This evening I read a quote that put a massive grin on my face- ‘Try to be like the turtle…at ease in your own shell‘. Such simple words lifted my spirits right up. For me at this current moment in time they ring true. The way I look now is not what I would call me. The dystonia alien controls how my face looks and what position my arm and leg take on. However I need to accept for now this is part of me. No matter how I look, I need to learn to be confident in myself because at the end of the day I am me. It is my personality that counts not my appearance.



I'm 27 years old, a mother, author, partner and spoonie. I suffer from Dystonia,POTS, EDS, Osteoarthritis and Lyme Disease. I have set up my blog to help spread awareness and bring light to this condition. This blog will be full of all my experiences that happen during my dystonia and chronic illness journey, from natterings, musings, moans, laughs, highs and lows. :-) It will be a little bit of everything

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