Posted in Archive, December

Lasts Nights Fight With My Jaw

Advertisements

At this very moment in time, I feel like my body spent the whole of last night trying to get back at me for writing a positive post yesterday. I had spent the whole of yesterday feeling rather odd, like half my brain was missing and the other half was covered in fog. By the evening my jaw was really playing up, with my dystonia pulling each side of my face in opposite directions, which was agony, this of course then led on to hours of Non Epileptic Seizures. Consequently I have woken up this morning feeling like my body has been run over by a bulldozer and my head been repeatedly hit by a hammer. However on the bright side of things, today my jaw Dystonia is a lot better than yesterday.

I have decided that today I shall completely avoid solid food and only consume softer food such as soup or yoghurt, in an attempt to try and prevent my Jaw from playing up so much, as I really want to be able to enjoy tonight’s New Years Party.

Tomorrow I plan on writing a letter to my consultant, to ask for a date for him to administer my injections and to ask for a plan to be put in place for future injections to be administered. I am hopeful that I shall not have to wait to much longer for these injections, considering he was meant to do them several weeks ago, but failed to give us a date.

I am hoping that the New Year shall be filled with positivity and improvement.

 

51.796078-0.655879

Author:

I'm 27 years old, a mother, author, partner and spoonie. I suffer from Dystonia,POTS, EDS, Osteoarthritis and Lyme Disease. I have set up my blog to help spread awareness and bring light to this condition. This blog will be full of all my experiences that happen during my dystonia and chronic illness journey, from natterings, musings, moans, laughs, highs and lows. :-) It will be a little bit of everything

6 thoughts on “Lasts Nights Fight With My Jaw

  1. Dystonia Muse – I'm a friend, daughter, sister, creative mind, honorary auntie, fan of the quantum mechanical, hopefully one-day spouse, now also health care advocate, here to share my life-journey with the neurological movement disorder, Dystonia, which began with a "mis-step" when I was 8-1/2. Though Dystonia may have staged a coup over certain body parts, my heart and soul remain firmly my own. I invite you to join me on my quest to find the comedic lurking in this chronic epic!
    Dystonia Muse says:

    Rebecca, I simply don’t understand the behavior of your consultant in failing to give you injections that will give you needed relief and are not counter-indicated for medical reasons. Of course this is the holiday season and things tend to be a bit crazy but still, we are talking about your health and your comfort. I hope that in 2013 you can impress upon him the importance of more timely injections though that certainly shouldn’t be your responsibility. -Pamela-

  2. I wish your consullant could have been in the room with us Rebecca for your 5 hours of seizures last night, starting with you collapsing from standing onto a hard floor! The medical profession do not seem capable of viwing the wider picture, only the illness. keep cheerful my beautiful daughter xx

  3. I wish your consullant could have been in the room with us Rebecca for your 5 hours of seizures last night, starting with you collapsing from standing onto a hard floor! The medical profession do not seem capable of viwing the wider picture, only the illness. keep cheerful my beautiful daughter xx

Leave a Reply