Posted in Archive, March 2016

I’m Not Sorry…


My blog post earlier in the week sparked conversation on social media which is something I love to see; it also got me thinking. When I inform a date/potential date that I’m ill, I almost always apologise. I don’t quite know why I say sorry. Perhaps it is because I know that I’m not exactly what you see, but who really is, or maybe it is an automatic reaction to help deal with the social awkwardness that I’m feeling and attempting to suppress. I am awful for stuttering out an apology whenever nerves take hold.

This is a quality of myself that I can control. A rather refreshing thought. So after a period of reflection I’ve decided I’m no longer going to apologise for my conditions. They are part of me, good and bad. If I can learn to see the humour in them, then others can too. That’s not to say I won’t profusely apologise if I spasm and hit someone, of course I will – then again I’ll also probably laugh.

I feel quite delighted with my decision. Taking another step, and embracing my alien just that bit more.


I'm 27 years old, a mother, author, partner and spoonie. I suffer from Dystonia,POTS, EDS, Osteoarthritis and Lyme Disease. I have set up my blog to help spread awareness and bring light to this condition. This blog will be full of all my experiences that happen during my dystonia and chronic illness journey, from natterings, musings, moans, laughs, highs and lows. :-) It will be a little bit of everything

2 thoughts on “I’m Not Sorry…

  1. I think you’re right to tell people who you’re dating that you have a condition that produces symptoms episodically, but you shouldn’t apologise for it; in any case it doesn’t need to be the first thing you tell them – unless settling down to have children with them comes up on your first date! Good luck and best wishes, Peter

  2. I love your blog. This one was especially wonderful. Good for you. Why not laugh instead of cry? There is humor to be found in almost any situation. I am 59 and have had Dystonia in my trunk/back for 9 years. Botox has become my best friend. After 3 years of almost no walking, Botox, gave me back the ability to move again. Constant therapy and exercise keep me moving.

    I no longer experience spasms, so I am one lucky lady!

    Sent from my iPad


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