Posted in October

Dystonia Alien Plays Games

Posted on by dystoniaandme
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Tonight the dystonia alien decided to show me what else it could do with my hand. Normally when my spasms last for a long period of time we end up trying to force them to release. However this particular spasm seemed to be determined to stay for as long as it wanted. Every-time we thought we had managed to release it, it decided to return. In the end we gave up, and decided to let the dystonia alien have its fun. The theory was that if we let it run its course, then perhaps the time in-between the spasm finishing and then returning would be longer. As I am writing this, it is still in spasm. If the muscles and tendons in my hand had the ability to scream, right now they would be.

The image shows the Dystonia aliens latest spasm game…

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Author:

I'm 27 years old, a mother, author, partner and spoonie. I suffer from Dystonia,POTS, EDS, Osteoarthritis and Lyme Disease. I have set up my blog to help spread awareness and bring light to this condition. This blog will be full of all my experiences that happen during my dystonia and chronic illness journey, from natterings, musings, moans, laughs, highs and lows. :-) It will be a little bit of everything

3 thoughts on “Dystonia Alien Plays Games”

  1. thejollyrunner – Haltom Cty, TX – There's so much and so little time. The two most important things to know is I suffer from a condition caused Generalized Dystonia and that I love to run. Ironically, two things that don't mix are what now defines me. I have a whole variety of other interests such as my long standing devotion to the Texas Rangers. I am also quite the hunter, fisher, and all around outdoorsman. If I had more time and less dystonia pains, I would fit in more gardening, home improvement, and probably some amatuer astronomy. And lastly, while my life is regrettably being slowed down from the dystonia, I am trying my hand at writing. I have a lot of ideas and it would be nice to see if I have what it takes to create some works worthy of publsihing.
    thejollyrunner says:

    If it helps, one of the things I have learned about dystonia spasms is to let them run their course. If you fight back, they just fight harder until you give in. I try to make jokes to make it less stressful. Hope this helps!

    Reply
    1. dystoniaandme – Tring, Hertfordshire, – I'm 27 years old, a mother, author, partner and spoonie. I suffer from Dystonia,POTS, EDS, Osteoarthritis and Lyme Disease. I have set up my blog to help spread awareness and bring light to this condition. This blog will be full of all my experiences that happen during my dystonia and chronic illness journey, from natterings, musings, moans, laughs, highs and lows. :-) It will be a little bit of everything
      dystoniaandme says:

      Thank-you will deffo give it a go! Sometimes I have no choice but to try and break it as my fingers tend to go blue lol xx

      Reply

  2. your blog is amazing. I’ve only just been diagnised this last year with focal dystonia and in the last 6 months, my little “alien” has been kicking it into high gear. I hope you are making some headway. It’s great to read about someone who understands exactly how little control you can have over your body.

    All the best.

    Reply

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